The GenomEthics study sat within a molecular research project also being conducted at the Wellcome Sanger Institute in Cambridge, UK, called the Deciphering Developmental Disorders (DDD) study, funded via an £11mill grant from the Health Innovation Fund, a partnership between the Department of Health and Wellcome. The DDD project aims to uncover the genetic basis for developmental disorders that occur in children who currently have no diagnosis. Through a collaboration with the NHS, exome sequencing is offered to families with pertinent results returned.

The GenomEthics study was an empirical ethics project involving an international online survey that gathered attitudes towards the return of incidental findings from sequencing research. The survey gathered attitudes from just under 7,000 people from 75 different countries. Results have been published and presented extensively.

We created nine films that explain more about sequencing research and incidental findings, these sat in the survey and provided enough background information to be able to answer the questions.

Watch the films on the YouTube playlist 

The GenomEthics study closed in 2016.